rosie saying hi

We are back in Des Moines. Stopped in and took a picture of her. She says hi to everyone. Everything is going ok they are taking an xray to see why her blood gas isnt doing that well. They turned down the oxygen and she didnt like it. The cardiologist didnt find and problems with the PDA so far.

2 weeks

Rosie is 2 weeks old today she finally opened her eyes right after we left so we didnt see her open them. Which is sad but great the she opened them just wish we could have been there. We will be at home tonight so tomorrow we can send balloons to heaven for Rosies sister Alessa who was "born an angel" 1 year ago on the 25th of july. Then we will get back up to Des Moines as soon as we can.

Rosie is gaining weight and getting more food every day it may onlybe ounces and mils but when your that small every little bit counts.

eating good

Rosie is now up to 3 mils of milk every 3 hours and tolerating it good. She does have a small murmur of the pda. Which they are not 2 worried about at this point and the operation to close it is not an open heart surgery. It is for the most part an easy surgery and fairly common in preemies, with a good outcome in most babies. Urine output today is good and blood gases are good also. So she is having a good day. She is resting on her Mommas chest right now, sleeping peacefully. She got a little hat today. Its so cute.

update

Today was just an ok day. Rosie had to be put on dopamine because she stopped peeing this morning. So far it has worked. Her blood gas was high today,but has gone back to normal with some minor adjustmenst to the vent. She needs some prayers I think.

10 days

Rosie the Riveter

Today Little Rosie is 10 days old. I have been gone from home for 10 days tonight is the first night we will be home. She is not the youngest baby in the NICU but she is the smallest still. The last 10 days have been like a whirlwind. I cant wait to get back up there though because that is my new normal. Her blood gas is still good she just got tired again and needed a little help breathing. But so far the bloodwork is all good and nothing else is showing up.

We are being supported by http://www.untiljourneysend.org/meet-our-families/

http://rmhc.org/

back on the vent

Rosie had to go back on the vent today she either just got tired or she has an underlying infection which they are testing her for now. If no results come back she may have to have a full workup and that would include looking at the fluid in her lungs and doing a spinal tap. She had no spells just a low blood gas. Today Momma is feeling a little cough coming on and it may be a cold so we are spending some time at RMH today and may go home for the night. Not sure yet it depends on the test results.

I really hate to leave!! I really hate not knowing what our future is going to be. I cant control the outcome of this situation and its the worse feeling in the world.

good day

Rosie had a good day today. Still no spells her blood gas was a little low and they gave her a medicine to bring it up and that worked. She is getting feeding every 3 hours now the pooper is still working good. Her nurse Amy was there today and she loves Amy shes such a good girl I didnt hear her ding nearly as much as yesterday. She likes being on her tummy the best. Not surprising since her mom and I both sleep on our stomachs. When I always lose my faith in humanity it always surprises me when so many people do so much for others like the Ronald Mcdonald house, all the nurses at the hospital, and the many organizations that support people in medical emergencies that have to be far from home and all the friends. Thanks everyone!!