80 days

Rosie is 80 days old now she is still working on eating and growing she will most likely go home on oxygen but she is getting closer to coming home. She is eating "add lib" which just means she can eat from 38 mils to 50 mils its her choice if she eats all 50 she waits 4 hours if she eats less she has to eat in 3 hours. If she does not eat at least the 38 mils then they will put the rest in her feeding tube. She had a room air test to see if they could take off the oxygen and she failed but that wont stop her from going home. She has to eat from her bottle for 48 hours in a row without putting it in the tube before she can go home. She will have a couple of tests to pass like lying flat for 2 days and sitting in a car seat for 2 hours.

I would like to thank some of the people that have been such a help to us like Until Journeys End, The Ronald McDonald House, and the staff at the NICU. Also all our family and Friends who have been there for us through this tough time.

first bottle

bottles and beds

Rosie is doing great she is taking her bottles good. Right now its every other feeding so she doesnt get to worn out. She also got to go to a baby bed. She weighed 4.1 pds last night. Everything is happening fast this week we had to sign up for our CPR class. As that is a requirement for her discharge. So we are getting closer to the big day when she goes home. Thanks for all the nice comments and prayers everyone!!

off vapotherm

Rosie is off the vapotherm now the next step is getting in a crib and starting her on a bottle. Then she can think about coming home. Everyone got the sniffles this week so we are trying to stay away from Rosie so we dont get her sick. To my hubby you should check your yahoo tonight for messages.

34 weeks (gestational age)

Rosie is doing good. Shes getting back to her feedings and off the iv. They are trying the vapotherm on 2 again. hope that goes well. She hasnt gained any weight shes at 3.8 still so she hasnt lost any either so thats good. Shes at about half her feeding that she was on.

2 months old

happy 2 month birthday to Rosie

Rosie was 3.8 oz the the other day then she was 3.12 now shes back to 3.8. They tried to turn the vapotherm down then had to turn it all the way up to 4 today because she kept having spells and had to be bagged twice (forced by hand to breathe with the little blue bag) she still has the tube in her throat sucking air out. still no feedings and she was getting a blood transfusion when we left shes had an eventful couple of day Id say. So please remember yours prayers everyone thanks so much,. On a good note all the tests that are back are are normal with no infections anywhere.